Exploring the Intersection of Skin Health Rights and Educational Access for Learners with Albinism in Nemamwa Growth Point, Zimbabwe

Exploring the Intersection of Skin Health Rights and Educational Access for Learners with Albinism in Nemamwa Growth Point, Zimbabwe

Munyaradzi Chidarikire* mchidas78@gmail.com Great Zimbabwe University, Masvingo, Zimbabwe
Angela Elizabeth Ledon Maduro ledonmaduro@gmail.com Matutu and Mureri Law Chambers, Masvingo, Zimbabwe
Takunda Chikwati takundachikwati@gmail.com Great Zimbabwe University, Masvingo, Zimbabwe
Summary: 

This study explores the skin health rights of learners with albinism in Nemamwa Growth Point, Zimbabwe, focusing on the challenges they face and potential solutions to enhance their access to skincare and health services. Every Zimbabwean, including learners with albinism, has the right to health as enshrined in the Constitution of Zimbabwe, Section 76 (1). In this qualitative study, we employed a content analysis method. The research was conducted in two rural schools in Nemamwa Growth Point. Participants included four learners with albinism, reflecting gender balance and allowing for an exploration of gender-specific experiences. Additionally, two community leaders, two teachers, two parents (one male and one female), and representatives from two non-governmental organizations (one male and one female) were included. These participants were aged between 12 and 45, with some having albinism and others not. All participants resided in the Nemamwa area. Data were generated through focus group discussions. Ethical considerations, such as informed consent and parental permission, were observed. One key finding revealed that learners with albinism experience heightened vulnerability due to the lack of accessible skin health resources. Based on this finding, the study recommends the implementation of targeted health education programs that address the specific skin needs of learners with albinism.

Keywords: 
albinism
health rights
growth point
rural education
inclusive policies
Zimbabwe.
Refers: 

[1] Aborisade, R. A. (2021). “Why always me?”: Childhood experiences of family violence and prejudicial treatment against people living with albinism in Nigeria. Journal of family violence, 36(8), 1081-1094.

[2] Adelakun, O. S., & Ajayi, M. A. O. (2020). Eliminating discrimination and enhancing equality: a case for inclusive basic education rights of children with Albinism in Africa. Nigerian Journal of Medicine, 29(2), 244-251.

[3] Baker, C. (2018). Children with albinism find it hard to navigate school: Teachers can help. Retrieved Retrieved December 2024, from https:// theconversation.com.

[4] Baker, C., Lund, P., Nyathi, R., & Taylor, J. (2010). The myths surrounding people with albinism in South Africa and Zimbabwe. Journal of African cultural studies, 22(2), 169-181.

[5] Benyah, F. (2017). Equally able, differently looking: discrimination and physical violence against persons with albinism in Ghana. Retrieved December 2024, from http://doi.org/10.17.59/2413-3027/2017/ v30n1d7.

[6] Bradbury-Jones, C., Ogik, P., Betts, J., Taylor, J., & Lund, P. (2018). Beliefs about people with albinism in Uganda: a qualitative study using the Common-Sense Model. PLoS One, 13(10), e0205774.

[7] Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2), 77-101.

[8] Brocco, G. (2015). Labeling albinism: language and discourse surrounding people with albinism in Tanzania. Disability & Society, 30(8), 1143-1157.

[9] Brown, E. D., & Williams, B. K. (2015). Resilience and resource management. Environmental management, 56, 1416-1427.

[10] Bucaro, S. (2010). A black market for magical bones: the current plight of east African albinos. Public Interest Law Journal, 15(2), 131-140.

[11] Burke, J., Kaijage, T. J., & John-Langba, J. (2014). Media analysis of albino killings in Tanzania: a social work and human rights perspective. Ethics and Social Welfare, 8(2), 117-134.

[12] Chu, B., Maranga, A., Mosojane, K. I., Allen-Taylor, L., Ralethaka, M., Ngubula, J. C., ... & Williams, V. L. (2021). Sociodemographic features of a cohort of people living with albinism in Botswana. JAAD international, 2, 153-163.

[13] Couteau, C., & Coiffard, L. (2015). The interest in nanomaterials for topical photoprotection. Cosmetics, 2(4), 394-408.

[14] Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: Choosing among five approaches. Sage publications.

[15] Franklin, A., Lund, P., Bradbury-Jones, C., & Taylor, J. (2018). Children with albinism in African regions: their rights to ‘being’and ‘doing’. BMC international health and human rights, 18, 1-8.

[16] Gaigher, R. J., Lund, P. M., & Makuya, E. (2002). A sociological study of children with albinism at a special school in the Limpopo province. Curationis, 25(4), 4-11

[17] Gallego-Ortega, J. L., & Rodríguez-Fuentes, A. (2021). Teaching attitudes towards students with disabilities. Mathematics, 9(14), 1637.

[18] Gedfie, M., Getahun, D. A., & Negassa, D. (2021). Barriers to and strategies for parental involvement in the education of children with disabilities in primary schools in Bahir Dar City Administration, Ethiopia. British Journal of Special Education, 48(2), 235-258.

[19] Gyasi, M. N. K., Okrah, A. K., & Anku, J. S. A. (2020). Teachers’ Knowledge of Special Educational Needs and Disability Students and Their Classroom Management Approaches. World Journal of Education, 10(4), 160-172.

[20] Hart, T., & O’Reilly, M. (2018). ‘The challenges of sharing information when a young person is experiencing severe emotional difficulties’: implications for schools and CAMHS. Child and Adolescent Mental Health, 23(3), 235-242.

[21] Hearn, J. (2007). African NGOs: the new compradors?. Development and change, 38(6), 1095- 1110.

[22] Lehman, L. E. (2018). Parental Involvement Within The Special Education System (Masterʼs thesis), Bethel University.

[23] Machingambi, M. (2023). Exploring barriers to learning hindering Learners with albinism’academic achievement at schools in the Masvingo district in Zimbabwe. International Journal of studies in Psychology, 3(1), 28-37.

[24] Maree, K. (2019). First steps in research (3rd ed.). Pretoria: Van Schaik Publishers.

[25] Maunganidze, F., Machiha, K., & Mapuranga, M. (2022). Employment barriers and opportunities faced by people with albinism. A case of youths with albinism in Harare, Zimbabwe. Cogent Social Sciences, 8(1), 2092309.

[26] Maurer, K. (2015). Albinism in Children. Kellogg Eye Cente, Michigan.

[27] Mohajan, H. K. (2018). Two criteria for good measurements in research: Validity and reliability. Annals of Spiru Haret University. Economic Series, 17(4), 59-82. Munyuzangabo, C. (2018). The Harmful indivisibility of people with albinism.

[28] Mutsaka, F. (2020). In Zimbabwe people with albinism struggle against prejudice. Retrieved December 2024, from https://abcnews.go.com/international/ wirestrory/zimbabwe-people-albinisimstruggleprejudice-71232597

[29] Nebre, M. (2018). Social discrimination against people with albinism. Retrieved December 2024, from www.csustan.edu>groups>journal-two>17nebre.

[30] Tambala-Kaliati, T., Brenya, E.A., & Frimpong -Manso, K. (2021). Living with albinism in African community exploring the barriers of persons with albinism in Lilongwe District, Malawi’. https://doi.org/10.1016/j. helion.2021e07034.

[31] The Albino Foundation. (2017). Albinism in Africa. Retrieved December 2024, from www. ab=lbinofoundation/albinism-in-africa.

[32] Zimbabwe Albino Association. (2016). Why people with Albinism. Retrieved December 2024, from https:// zimbabwealbinoassociation.wordpress..com/home/ about-us/

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